Ok, last friday Russ had his visit at Loma Linda at the heart clinic. The visit was good. He was able to be taken off of one of his expensive medications. Then he was told that he was able to start having a blood test that would check for rejection, that came back negative (woohoo).
We got home to a message about his white blood cell count being too low. They want it above 3 and his is lower than that. So, he reduce the dose on one of his meds (Cellcept)in hopes that it would help raise the number up. Today, he had blood taken to see where he was at and again the white blood cell count went down. Not good. So now he is totally taken off Cellcept and will be put on a 3 day shot treatment that is given to cancer patients in hopes that this will raise the number.
I have read that this is normal but it does scare me. Please pray that this is a small speed bump that we have to go over and that all is well.
Thanks
AuraLee
UPDATE: June 13th will be One and a half year post transplant ............................................................... On January 13, 2012 we received "the call" we had been waiting for. The transplant team found a heart. So now we start a new journey, a new road, a road with a new heart.
Thursday, April 19, 2012
Friday, April 13, 2012
Another friday the 13th.......
Well, we had a visit today that brought some good and some not so good news. Good news is that he gets to get rid of another high cost medication. We are happy. Now the not so good news is that we got home to news that his white blood cell count is low. I guess they want to see a number above 3 and his is below. This means that his immune system is being too suppressed and he can very easily catch anything now. So hopefully by making adjustments to one of his meds he should be OK but they are watching his blood work.
Please hold good thoughts and prayers that the is a minor thing and he stays well.
Thanks.......
Please hold good thoughts and prayers that the is a minor thing and he stays well.
Thanks.......
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